For many people living with sarcoidosis, fatigue can be one of the most challenging symptoms. Yet scans, blood tests and lung function tests don't always explain just how unwell you feel. This mismatch can be frustrating and can leave people wondering whether their symptoms are being taken seriously.

In our new video, Professor James Galloway, Professor of Rheumatology at King's College London, explains why fatigue doesn't always reflect disease activity, why normal test results don't mean your symptoms aren't real, and why clinicians may focus on other aspects of your condition during appointments. 

If you've ever wondered why you still feel exhausted despite reassuring test results, this video offers practical advice and reassurance to help make sense of what you're experiencing. Click below to watch the full video now or read the transcript.

After finding a small lesion on his upper lip, Martin underwent tests which eventually led to a diagnosis of sarcoidosis. He has shared the impact that sarcoidosis has had on his life:

"It became a long, non-acute, systemic presence in my life. It became the thing sitting behind appointments, blood tests, scans, medication changes, side effects, questions, and decisions. It became something I had to learn to live with, not just something I had to be treated for."

Thank you for sharing your sarcoidosis journey Martin