Awareness Month is a great chance for us to focus on the things SarcoidosisUK does for its patients, families and supporters. It’s great to be able to celebrate some highlights but also to remind you we are here all year round for the sarcoidosis community.

This month, we shared new sarcoidosis stories, highlighting how sarcoidosis affects people in so many different ways. We held an extended Q&A session with one of our nurses, dedicated to those with a recent diagnosis (It was so popular, we are organising another session – watch this space!). We committed all of our fundraising income to our research funds during Awareness Month, with another SarcoidosisUK Research Innovation Award programme coming to an end today. We continued sharing vital information about sarcoidosis and supporting our community, but, as ever, if there’s something you’d like from us – please tell us! You can contact the office on 020 3389 7221 and info@sarcoidosisuk.org.

Looking back on April is so encouraging. I am so grateful for the office team and the large number of volunteers and fundraisers all over the country who are dedicated to doing their bit to make the lives of the sarcoidosis community that little bit better. Thank you!

This Sarcoidosis Awareness Month, we shared the stories of four of our supporters. 

Sarcoidosis can be a confusing and isolating diseases. Thomas, Gregory, Debbie and Jean shared their experience with sarcoidosis to help others feel less alone in their journey. 

They opened up about the struggle to find the right doctor for your care; navigating treatment; the importance of a good support system; raising awareness; and much more! Click the button below to read their Sarcoidosis Stories. 

If you'd like to share your sarcoidosis story too, please get in touch via info@sarcoidosisuk.org.

Thank you so much to everyone who has donated this Sarcoidosis Awareness Month. This year, every pound raised in April is going directly into funding vital sarcoidosis research.

Sarcoidosis suffers from low-levels of research, and so we’re pleased to have dedicated a whole month to building our research fund, to be able to build a bigger picture of sarcoidosis and work towards better outcomes for sarcoidosis patients.

We are so close to reaching our target! Can you help us reach £20,000?

We don't know about you, but we loved watching the London Marathon this year, and we don't mean the world record breakers! We're talking about the crowds cheering complete strangers on, seeing runners find their family and friends on the route for that much needed motivation boost, and watching people take on 26.2 miles for incredible causes. 

Have you been as inspired as us? Although we unfortunately don't have any places for the 2027 London Marathon, we have spots for so many other amazing events! You can raise vital funds and awareness for sarcoidosis in Edinburgh, Cardiff, Manchester, London, and even internationally (and don't worry, we won't ask you to run with a fridge tied to your back!). Click below to see some of our featured places, or get in touch if you don't see an event for you via eva@sarcoidosisuk.org. We can't wait to cheer you on!

Chances are, you probably hadn't heard of sarcoidosis until someone you know was diagnosed. This can make it hard to know what you can do to help.

Here are some ways you can offer your support:

• Learn about sarcoidosis - why not download one of our factsheets?
• Check in with them, a simple 'how are you?' can go a long way;
• Try to be understanding and flexible - fatigue is unpredictable and can lead to last minute cancellations;
• Don't be afraid to ask what they need from you;
• Remember that we're always here for you! Click the button below to see the different way we can support you. 

Applications for the 2026 award have just closed, and we plan to announce the successful research programme(s) during the summer.

SarcoidosisUK launched its Research Innovation Awards last year, providing funding for innovative and novel research proposals that seek to address any of our research priorities:

• Expanding the understanding of sarcoidosis.
• Improving diagnosis and prognosis.
• Discovering new and better treatments.
• Addressing quality of life issues for those living with sarcoidosis.
• Understanding Sarcoidosis epidemiology in the UK.

The award programme has funding at least until 2028, and we are excited to see what this year’s applicants are proposing.

Sarcoidosis Awareness Month may be coming to an end but you can still continue to shine a light on sarcoidosis! Here are some way to raise awareness of sarcoidosis. 

• Share your sarcoidosis story with family, friends, colleagues, or with us
• Order a free information card about our sarcoidosis eLearning course and pass it to your GP the next time you have an appointment
• Give someone you know one of our sarcoidosis information leaflets or send them a link to our factsheets
• Put up one of our support services posters in your local hospital or GP surgery
• Wear one of our badges!

The more people who know about sarcoidosis, the better support those affected can receive and the less alone they may feel. Shout about sarcoidosis today.

You can order our leaflets, GP cards, posters, and badges via the button below.

Do you have pulmonary sarcoidosis? Are you a parent? Research has shown that patients with chronic, lifelong health conditions need more support for their families. We need your help to define exactly what that could look like.

We are excited to share a new survey led by our partners at the European Lung Foundation and Hilary Hodge, co-chair of SHARP, the severe asthma research consortium of the European Respiratory Society.

Why participate?

Share your voice:

Tell us what training your family actually needs.