Sarcoidosis can be a confusing and isolating diseases. Sharing your experience can help others feel less alone in their journey. 

Your voice is powerful and your story is important.

We want to hear from you, whether you're a patient, a loved one, a carer, or maybe even a researcher. 

Please email info@sarcoidosisuk.org and share your story with us. 

Jess’s Rule is a new primary care initiative to encourage GPs teams to rethink a diagnosis if a patient presents three times with the same symptoms or concerns.

Jess Brady passed away in 2020, at age 27, after a delayed cancer diagnosis. This new rule, in her name, introduces a 'three strikes and rethink' approach. This could give GPs a crucial opportunity to consider a rare diagnosis, including sarcoidosis.

Sarcoidosis is a complex condition that can present with a wide range of debilitating symptoms and affect any part of the body, which is why it is often misdiagnosed.

Jess's Rule encourages seeking second opinions and specialist referrals, which is often crucial for a sarcoidosis diagnosis.

We're pleased that Jess's Rule helps to formalise the process of reflection and rethinking for GPs and we hope that it leads to a faster, more accurate, diagnosis for sarcoidosis patients.

We are thrilled to announce the winner of our 2025 Christmas Card Competition - Jenny. Congratulations!

But the excitement doesn't end there! You can now order this fantastic design, spreading the holiday cheer to all your loved ones near and far.

Order a pack of 10 cards made from recycled materials for £5.50!

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All purchases made in the SarcoidosisUK Shop contribute to funding our vital work. Visit our website today and make this holiday season extra special with our Christmas cards.

You can still grab designs from previous years on the SarcoidosisUK Store, so order now to avoid missing out.

Our “Have Your Say” questionnaire closed earlier this month and we’re very grateful

to everyone who took the time to respond. Your views are really important as we

want SarcoidosisUK to reflect the concerns and priorities of the patient community.

As we start planning for 2026, the main themes we have picked up from your

responses are:

• Support and awareness are very important
• GP knowledge is still poor across the country
• We need to set up more support groups to cover more of the country
• You would like our website to have a better search function and easier
• navigation

We’ll do our best to build these into our strategy.

Thank you for your contribution to the questionnaire. If you were unable to complete

it, and have ideas on what we can do to help you, we’d love to hear from you by

email to info@sarcoidosisuk.org.

On the 23rd of October, SarcoidosisUK hosted a virtual Sarcoidosis Patient Day.

We heard from a variety of speakers on a range of topics, with 5 different sessions throughout the day. If you missed any of the talks, or would like to watch them again, the recordings and transcripts for each session are now available on our website!

Join us as we kick off our annual 12 Days of Christmas Advent Calendar.

Keep an eye on our socials for SarcoidosisUK's 12 Days of Christmas! Watch our social media platforms for daily posts and engage with our Advent Calendar every day to help us raise awareness for sarcoidosis among your family and friends this holiday season. Let's spread the cheer and support together. Are you ready?

Last week, we attended the British Thoracic Society Winter Conference! 

We were able to raise awareness of sarcoidosis and the work that we do supporting patients. It was an amazing opportunity to showcase sarcoidosis and talk to experts in respiratory healthcare.

Please see below for the dates of our upcoming support group meetings. If you would like to attend, please email info@sarcoidosisuk.org. Anyone affected by sarcoidosis is welcome - so come along and join us!

• Sheffield Group Meeting - 4th December 1:30pm (In-person)
• Bristol Group Meeting - 16th December 7:30pm (Online)
• North West Group Meeting - 12th January 6:45pm (Online)
• Bristol Group Meeting - 20th January 7:30pm (Online)