A woman with a rare form of neurofibromatosis says she "lives in fear" her disability benefits will be stripped from her. Pearl Kelly suffers from a range of debilitating health issues including scoliosis, kyphosis, osteoporosis, supraventricular tachycardia, dural ectasia, and external dyspnea. The 29-year-old, who uses a wheelchair, receives the lower rate Personal Independence Payment (PIP) reviewed every three years and is terrified it could be cut. “I’m not going to get better in three years”, says Pearl. “But I’m constantly worried. I hear about people being reviewed and having their payments reduced. It’s a huge stress.” |